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Showing posts from April, 2020

Short update

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I am still in isolation and off treatment. Had a couple of training days that were a bit off off but did pretty well on the bike trainer today. Generated an average of 20 Watts more on the same workout I did about a week ago. Granted, pushed a bit more than target zones today, but was feeling good - did not even have to go through the "clear the lungs, feeling congested from allergies" portion of the program. Have biked close to 35 miles and running close to 5 miles the las t 7 days. Yesterday I had a chance to speak with a doctor running drug trials. Due to the coronavirus, there is no time frame as to when trials will open up again. He did get a chance to review the information about my case that he has received so far and there are a couple of mutations he noted which may point to certain trials. Which is positive news for sure. A bit of hope in all of this. I also will probably go on the third line chemotherapy shortly to hopefully stop the cancer growth until I get into ...

Buying Time

With covid-19 running rampant I am "pausing" my treatments.  Actually I am not having treatments right now, but really pausing moving forward to select treatments.  I really do not have much choice. My best options will in all likelihood be drug trials.  But they are pretty much shut down right now.  My first potential one fell through.  Another one is completely on hold.  I was going to speak with a doctor about it via FaceTime, in the hope that I can get some information about the study in order to "hang on" to see if it is worthwhile.  But even that presents a problem - when they realized I am in a different state they may not even be allowed to speak to me just to give me a background.  I also need to be careful which treatment I choose now, since it could stop me from being qualified for a trial.  Plus the thought of going out to a hospital for treatment seems to present a higher risk then sitting on my cancer for a couple of months....