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Showing posts from June, 2021

Negotiation 101

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Today - Doctors/Staff : "You don't get paid for being a human guinea pig. But you don't have to participate in the drug trial." Me: "Uh-huh" Doctors/Staff : "These have been shown to cause leukemia sometimes. But again you do not have to participate in these trials." Me: "Uh-huh" Doctors/Staff : 'And...." Repeat 20x or so. Me: (Despite the fact that all treatments have been used up and I have cancer every where that will kill me in the not too distant future as things stand, holds firm to my inner and external lawyer) "Fine, give me a hat and I will sign the papers. No hat, no deal." So going to get set up for a CT scan in the next couple of weeks. Then a biopsy. I miss those. Have not had one since 2018. Then on a 21 day cycle of the trial drugs. But I am only given the pills 21 days out of each 21 day cycle...ummm...I only have to drive 80 miles/2 hours each way for things...ummm. I GOT MY HAT!!! #Winning

Playlist Change

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   The Final Countdown The End of The Road My playlist (in my mind) got pretty small last week. On Weds I was told the chemotherapy stopped working and I was done taking the pills. No matter how much chemotherapy is not a bundle of joy, when you are told it is no longer working, it stinks. I miss feeling like ##%&#&#*#, because at least I know the cancer is at bay. I immediately contact the trial I got into last year. We were just waiting to see how far the Lonsurf would go and ride that horse as long as possible. Still have not heard back. I had also been remiss in not exercising for a few days. I had not seen my brother or his children in close to 20 months. The longest ever in any of their lives. But anyway, once I stopped using the excuse (not going to happen next time, I will train, but maybe not crazy long rides or runs) and they left, I dusted myself off and got back to it. The exercise has kept my lungs clear, which is why I find myself coughing more d...