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Showing posts from May, 2022

I Now Think I Am A Cancer Patient. Kind Of

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 Somehow I have become a cancer patient. After 7-1/2 years of dealing with this all, I never thought of myself as a cancer patient. But the pain and acceleration of the cancer the last 6 weeks has put that thought into my mind. I am a cancer patient. The pending surgery is concerning.  The news on my lungs is concerning.   In the last couple of days, as I wean myself off the steroids for the surgery, the pain limits me to getting off the couch for maybe a minute or two at a time before I have to sit.   And in the last three days my hands and legs have been wracked by spasms.  To the point I was screaming for a good portion of 6 hours on Tuesday night. There is nothing on the scans that indicate an issue where the cancer can be causing this.  My blood work is fine.  I have been making sure to drink water - I had a cramp a couple of days ago, in the hand, so figured I would get on top of that just in case. Nothing helped. For 7-1/2 years I have...

Kind of Stinks Part II

  Just got off a phone call with my doctor. So still processing. I am hanging in, but the cancer has spread. Had three drug trials. Last one failed a couple of weeks ago. Cancer has spread a lot, with a particular large burst in spine and lungs (been dealing with them for years, but now have really got problematic.) Waiting to hear if they will be doing surgery (if possible) on the spine. If so it would be ASAP. Within a matter of days. So far it is still open - the tumor board meets tomorrow (May 5) and I will have conversation with the surgeon shortly thereafter. Radiation will probably happen regardless of surgery, though I had radiation in 2018. My doctor said subsequent rounds of radiation usually not as effective. Also an issue about if the tumors can be radiated due to their positioning near my spinal cord. My lungs also are extremely problematic. There were a couple of tumors that were large and considered for radiation. But in a matter of a couple of months t...