Some Updates
I have been continuing to train. The big news is that the LONSURF is working. It is reducing the size of my tumors. That rarely happens. So will be continuing on with it, no trials, for as long as it works.
Strike Four
I sort of kind of knew I was close to be punted from my current drug study. And clearly I forgot how compounding works, so much for my M.B.A. 😉 Just got a call from @Yale. The total growth is about 19.7% since start of study. 20% is an automatic out. There may have been a way to squeeze another round in, but one of the other issues is that there were many tumors that were not measurable in my lungs which are now measurable. I may try to go back to FOLFOX, may be able to squeeze a few treatments out before the neuropathy comes back. And it will come back rather quickly. Or I can go on Stivarga, which is a pretty nasty drug. It seems FOLFOX may be the move. Normally at this point people are not in the shape I am in. It is tougher to handle drug combinations, as compared to one drug, the worse shape you are in. But if it slows things down a bit, it may buy me the time I need. It is a lot of fun. Cold sensitivity - touch the handles on the fridge and you want to scream, wea...
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