January 1, 2019 - Tyler Trent

I went for a run today to start the New Year.  Was going to blog about that.  What the year will bring.  My immediate future with a scan to see if the chemotherapy was working. Then I saw the news about Tyler Trent.

I hate cancer.  When I briefly fool myself about it, I am reminded what it is about.

Comments

Post a Comment

Popular posts from this blog

It is the End just about

Image
Tried setting up message groups iPhone to cut down copy and paste.  Did work well and difficult to add people. Full information here Trying again. First apologies for the time of messsge.    I know it is particularly early for the west coast.    I need to conserve every bit of energy at this point.    I would usually ask if okay to put you in or out.    Everyone is cool in this group so I figure it is okay 😀. Hey if you are my friends or family, we know you are off Second Apple is driving me nuts trying to set this up.    Please let me know who I missed, it probably is unintentional, hit a limit I think so hoping people will let others know in their family know  Last night was bad.    I was tired from not sleeping the night before and wound up napping.    When I woke up I was okay but started getting congested. Coughed up a good amount of blood. Whole show.    Bad.   You can see posts th...
Read more

And So It Continues

Image
I planned on doing updates over last week, but never got around to it. In light of the news I received yesterday, I figured I would back fill a bit and bring thing up to date. I thought I was coming out of the #chemotherapy effects April 13.  On Monday April 18 my back was still bad.  So I booked a session with a local acupuncturist.   She is a miracle worker and has helped many people with her needles.   I also booked a session with pain management at @memorial Sloan Kettering and contacted the doctor who radiated my spinal tumors in 2018.  He said he wanted to schedule a MRI. Of course, as always, shortly after doing all of those things my back started feeling a bit better.  Just making appointments always seems to cure things ;)  I was also hopeful that the back and leg pain was exacerbated by the chemotherapy. I saw the acupuncturist on the 20th and she performed her magic.  My pain was to the point of barely being noticeable for the...
Read more

Strike Four

Image
  I sort of kind of knew I was close to be punted from my current drug study. And clearly I forgot how compounding works, so much for my M.B.A. 😉 Just got a call from @Yale. The total growth is about 19.7% since start of study. 20% is an automatic out. There may have been a way to squeeze another round in, but one of the other issues is that there were many tumors that were not measurable in my lungs which are now measurable. I may try to go back to FOLFOX, may be able to squeeze a few treatments out before the neuropathy comes back. And it will come back rather quickly. Or I can go on Stivarga, which is a pretty nasty drug. It seems FOLFOX may be the move. Normally at this point people are not in the shape I am in. It is tougher to handle drug combinations, as compared to one drug, the worse shape you are in. But if it slows things down a bit, it may buy me the time I need. It is a lot of fun. Cold sensitivity - touch the handles on the fridge and you want to scream, wea...
Read more