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Strike Four

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  I sort of kind of knew I was close to be punted from my current drug study. And clearly I forgot how compounding works, so much for my M.B.A. 😉 Just got a call from @Yale. The total growth is about 19.7% since start of study. 20% is an automatic out. There may have been a way to squeeze another round in, but one of the other issues is that there were many tumors that were not measurable in my lungs which are now measurable. I may try to go back to FOLFOX, may be able to squeeze a few treatments out before the neuropathy comes back. And it will come back rather quickly. Or I can go on Stivarga, which is a pretty nasty drug. It seems FOLFOX may be the move. Normally at this point people are not in the shape I am in. It is tougher to handle drug combinations, as compared to one drug, the worse shape you are in. But if it slows things down a bit, it may buy me the time I need. It is a lot of fun. Cold sensitivity - touch the handles on the fridge and you want to scream, wea...
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And So It Continues

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I planned on doing updates over last week, but never got around to it. In light of the news I received yesterday, I figured I would back fill a bit and bring thing up to date. I thought I was coming out of the #chemotherapy effects April 13.  On Monday April 18 my back was still bad.  So I booked a session with a local acupuncturist.   She is a miracle worker and has helped many people with her needles.   I also booked a session with pain management at @memorial Sloan Kettering and contacted the doctor who radiated my spinal tumors in 2018.  He said he wanted to schedule a MRI. Of course, as always, shortly after doing all of those things my back started feeling a bit better.  Just making appointments always seems to cure things ;)  I was also hopeful that the back and leg pain was exacerbated by the chemotherapy. I saw the acupuncturist on the 20th and she performed her magic.  My pain was to the point of barely being noticeable for the...
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Some Updates

 I have been continuing to train.  The big news is that the LONSURF is working.  It is reducing the size of my tumors.  That rarely happens.  So will be continuing on with it, no trials, for as long as it works.
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